Showing posts with label Migraine. Show all posts
Showing posts with label Migraine. Show all posts

Monday, December 10, 2012

Chronic Migraine story: I am taught...

The doctor who finally helped me with migraines, Dr Digre, told me I have a more "sensitive and easily irritated" brain. Oh, joy. I kinda thought what she meant was that I was easily amused.

What happened before she told me that was that I was confronted with a little black box with blinking LED lights. I was to look at the lights and tell whether I could still see the blinking or steady on at the current rate setting. At some point, depending on the eye to brain interface, the perception of flickering would change into a blur of speed at which point the interpretive brain would change the perception from flicker to steady on.  And blah blah blah, more scientific tricks that had little significance to me, at the time.  Nothing to lose.

The technician giving the test would manipulate the settings on the box and then question me if I could still see the blinking. After recording my answers,  he would switch to box to a different rate. The box selected its rate as a random sequence, in no particular order, varying from high to low and back again across a whole wide spectrum of rates.

As I understood, I was impressed with the testing methodology. Simple and accurate. There was no possible way for the test to be fooled, because the variation of blink rate changed at random unpredictable sequence, controlled by the machine. As the test was conducted, enough samples could easily be taken to virtually eliminate sampling errors. The technician could not even control the blink rate at the current setting, so bias from the technician was impossible. Blink blink blink solid blink solid solid blink blink solid blink blink.

Turns out that individual perception of the highest oscillation rate varies widely. Those people with average flicker rate perception tended to lose the blinking somewhere over 45-50 cycles per second. They rated my perception at among the highest normally measured, more than 90 cycles per second.

Yeah, but so what? I didn't get it. Why did they care? I wasn't filled with any great sense of accomplishment to learn that my perception limit was much higher than average. Just a fluke, I guess. I never asked for it, that I know of.

After some more testing methods and questions from the Dr. she explained to me. The reason they want to determine individual blink rate perception is that the design of pieces of our whole system of advanced technology, from fluorescent lights to CRT displays to Game Boys, is based on assumptions and compromises around calculations of the average oscillation rate perception speed. Are you following this so far? In an especially significant choice of design specification, the engineers of fluorescent lighting devices decided that the optimum flicker rate of their light tubes would be based on their measurements of the average individual rate perception. For no particular reason but that somebody had to decide on a rate before they mass manufacture billions of these things.

Well, just my tough luck. I don't match the standard design. When the eye to brain connection encounters flickering rates at speeds near the border of transition from blink to solid, turns out all kinds of unforeseen and heretofore unknown things begin to happen.

For those with more sensitive brains, the oscillation rate so near the limit of perception begins to irritate that individual brain in some unpredictable ways. Some develop eye strain. Some become cranky and irritable for no reason. Some get whopping headaches. And some people develop chronic migraines, subject to variation in cumulative exposure and the occultic prediction of next phase of the moon, and other unknown unknowable and unpredictable factors.

Wow! So that's one plausible explanation for why I have constant headaches. And in spite of the fact that other people all around me are not suffering the same ill effects, I need some protection. Like a bullet proof suit or something. To protect me from a specific vulnerability or weakness that is especially my own.

Dr Digree told me that her researchers had discovered that the sensitive people were especially affected most often by exposure to high intensity fluorescent lighting systems, and CRT display devices of a particular refresh rate lower than around 70 cycles per second.

Damn! I had been working long hours with CRT display devices under high intensity fluorescent lighting systems for more than twenty years!

Okay, so Dr Digre said that in response to the research study, her group had developed filtered glass lenses that would effectively block exposure of the eye brain interface from the bombardment of some of this harmful lighting. The lenses cut out enough of the damaging rays of the right frequency of blinking light to protect sensitive people from the lights harmful effects.


 

Hallelujah! All it would take is wearing some sort of super glasses, and my problems would disappear! Well, not so simple. For chronic migranes, this eliminated only a few of the common triggers that set off some migrane sufferers anguish. The bright lights of the city are not the only thing that start a migrane so often in certain people. There are plenty of others. Who cares, its worth a try in any case.

Dr Digre wrote me a prescription for the optician, and I went off to get me a new pair of funky looking dark glasses.

I was crestfallen when I started wearing them in places were the risk factor for me was high. But I conducted a few studies of my own, and discovered that wearing the glasses in certain places really did make a difference.

It wasn't a problem just everywhere. My CRTs had been upgraded to higher refresh rates long ago, so the glasses made no difference that I could tell in working for long periods of staring at computer screens. But I discovered to my surprise that the most consistent offensive place was LDS chapels everywhere. All across the world, LDS chapel lighting systems seem to have been built with a cycles per second rate in the critical range. I started wearing the glasses all the time, whenever I spent long periods in the church building. The problem started to show improvement, but not at the end quite yet.

Dr Digre told me that one other problem area her researchers discovered was a very high correlation of migrane sufferers and extremely high blood pressure. She called up my regular doctor, discussed her findings with him, and increased the dosage of calcium channel blocker that I had already been taking to the thereputic range for this problem. I left the doctor's office feeling optimistic about the solution to my problems.

It worked. A week or so later, the headaches began to dwindle in intensity. Pretty soon they faded into the background noise. And I haven't experienced this particular problem since. Happy days!


Next instalment:   Abandoning Drug Treatment

Saturday, March 28, 2009

Migraine Weirdness IV



I want to kiss Dr Digre at the University of Utah Moran Eye Center. Ruth and Dr. Warner get kisses too, for helping me get in to see Dr. Digre. Without them, I'd just be another name on the list, probably dead. They helped salvage a dying man. Why, I'll never understand, but I'll alwas love them, all three.

After suffering with migraine pain more or less continually since July last year, I am now very nearly headache-free.

This time, I am hopeful that it is a long term solution.

Recall, I experimented before with the Zonisamide drug, Zonegran, which was developed for epilepsy and seizure suffers, but has seen more general application, as I believe, with migraneurs as a group. Migraine therapy tends to be rather experimental in nature. Just try something -- anything. Migraine sufferers will try just about anything to get relief.

Anyway, after titrating Zonegran to the 100 mg level, the migraine seemed gone, but I quit taking it for a time as I was admitted to the U hospital for testing, and the headaches came back with a vengance. Although I resumed the Zonegran, and started a number of other psychotropics after that, I have never been entirely headache free since. The "shark attacks" have steadily diminished, however, and the background migraine is barely noticeable now.

All in all, great progress is being made. I am able to function as well as before in many ways, although I do have some serious problems and challenges that remain. I keep very optimistic about the future, in ways I never felt so strongly.

I have honestly looked forward to death as a relief from the pain of this world. Now, it is looking better every day. Maybe I'll stick around for awhile after all. (big flashy smile)

Thursday, March 19, 2009

Migraine Weirdness III


It "looks" like another day of migraine weirdness today. I awoke with a developing scotoma, all gray, no scintillating outline, which is unusual for me, but it started as a small spot in the center of my view field and over the interval of about an hour, gradually grew to cover about 90% of my visible area, then over the next five minutes or so, cleared up and disappeared. All that is left now some three hours later is a small fuzzy purple disc in the very center.

I have also experienced some spectacular meteor showers -- or that is the best characterization I can compare to. My personal meteor showers seem to be multi-color displays, a rather pure red and green hue, and a kind of mercuric quicksilver that all leave a long-lasting trailing afterimage several seconds. They start as a single bright spark in periphery somewhere, appearing to be in the background rushing toward me at a terrific rate. The apparent object then undergoes transformation into a bursting effect and forms many smaller sparks, which also fission into smaller sparks, and so on, until my field of vision is filled with a plethora of fiery glittering sparks streaking toward me at a tremendous rate. They describe a perfect parabolic curve and miss me, disappearing out of the visual field as they pass beyond my peripheral view.

I only wish there was a more effective way to share some of the beauty I see in these experiences. It is quite spectacular -- in a lonely, self-centered sort of way.

Tuesday, February 10, 2009

Continuing Migraines III



Today they are screaming at me.

I just want it to stop, please!

I want to sleep, with soft pillows over my head. Don’t make any noise or talking. My heart makes twice as much noise as I can stand!

Ringing in my ears sounds so loud, I am sure they are sending it , mocking me.

It is the laughter of demons, ever pursuing, never relenting.

There are rats outside, scratching, scratching. I won't let them get in. They bite and lick the blood like thirsty vampires.

I cant stop the pain in my headaches and the screaming. It never stops.

Good news. My right hand was imagined problems.

The numbness was transitory, except for the thumb and index finger it is recovered today.

Bad news is, thumb and index on left hand are joining the boycot today. Appears to be just more migraine aura weirdness though. Maybe will all clear up after more sleep today.

Hope and pray.

I hope so

I hope so

I hope so

I hope so

Just let the screaming diminish!

Monday, February 02, 2009

Continung Migraines


I like this diagram from Ruths's blog.

When I started taking Zonegran, the background migraine seemed to go away when I titrated up to 100mg dose. The headache was gone for a while, but came back while I was at the University of Utah Hospital. Since then, even though they resumed the Zonegran at the therapeutic level of 300mg, and started titrating Topamax, along with a confusing cocktail mix of other drugs supposed to be prophylactic for migraine, the headache has continued. This morning, I noted that the intensity has doubled again, so I would now rate he background continual headache pain as hovering around between 4 and 5 on a scale of 10. By that I mean some times it is obtrusive to the point that the pain interrupts otherwise lucid thoughts.

Nothing that I know of relieves this headache. When it mounts full-scale, there is nothing else. It ranges up to 10 and beyond, meaning it dominates my thinking, and interrupt clear thoughts with pangs of headache pain. The only relief I have found then is sleep, sometimes induced by narcotic drugs. They don't seem to relive the pain, but they make me sleep while the headache runs its course. These headaches are different -- they are more chronic in nature, and unremitting, so I have wished at times for something that would afford a permanent sleep. Of course, more sensible minds have prevailed, but I still reserve that solution as the last resort.

Thursday, December 18, 2008

Migraine weirdness



I have been having a weird migraine day

All day, feeling strange. Bright colored spots dart across my field of vision, then quickly disappear. Tonight most of my vision is obscured by a blind spot, but am typing around the edges.

It is outlined with sparkling colors rotating in a wheel, sorta like the picture above. It is blocking off most of my central field of vision, but I can still see around the sides of it.

I don't seem to have a headache with this 'aura' anymore, but my stomach feels queasy, and I feel very uneasy. I don't like noise or lights. Best thing has been to go to sleep, if I can. It usually passes while I am asleep.

Saturday, December 13, 2008

Rehab progress 29


It is with the greatest relief that I note the passage of two headache-free days, for the first time since July. Finally, something that seems to work at stopping the awful pain.

After my doctors told me I was risking potential adverse side-effects from other pain relievers, I declined to use NSAIDs any longer. I was taking dangerously large overdoses seeking to get rid of headaches, and it wasn't working anyway. The neurologist finally prescribed a drug that was developed for migraine relief. It seems to do the job. I am very pleased. The medical community finally comes through with something that actually works for me!